Translate this page:

Region 4 Midwest Genetic Collaborative

Last Update:2/2/2018
Contact:
Title:
Address:
County:
Phone:
Toll Free:
Fax:
TDY:
E-Mail:
Website:www.region4genetics.org
Mission
The mission of the Region 4 Midwest Genetics Collaborative is to:
  1. Increase access to information about newborn screening and genetic resources, services and family support systems.
  2. Facilitate data collection and analysis to guide decision-making regarding screening cut-offs, diagnosis and long term treatment of heritable disorders.
  3. Support state public health agencies in improving infrastructure for genetic service delivery to children with heritable disorders.
  4. Provide a forum for families, public health, and clinical providers to share best practices and models for improving newborn screening, follow-up and genetic care coordination.
  5. Link Region 4 Midwest states with regional and national initiatives for improving the quality of newborn screening and genetic service delivery.
Program Description
Journey Through Diagnosis Guide - The Purpose of This Guide: The purpose of this guide is to provide information and support to families whose child has been identified with a genetic condition. This guide is written from the family perspective and includes information Region 4 Midwest families felt was important when facing a new diagnosis. The material includes advice and tips to help “guide” families on their journey.
 
Financial
The Region 4 Genetics Collaborative is a project of the Michigan Public Health Institute (www.mphi.org) and is funded by the Health Resources and Services Administration (HRSA) Grant Number H46MC24092
Services
Genetic Disorders
Metabolic Conditions
Rare Disorders
Sickle Cell Anemia
Counties Serviced
Entire State
ABOUT SPECIAL KIDS RESOURCE DIRECTORY
7172 Graham Road, Suite 100, Indianapolis, IN 46250 E-Mail: familynetw@aboutspecialkids.org

As a matter of policy, About Special Kids does not specifically endorse any of the resources contained on our website or in our information packets. Resources are supplied for information purposes only and ASK recommends that families explore all options for assistance before making an informed choice.