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RASopathiesNet

Last Update:4/26/2018
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County:Nationwide
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Website:https://rasopathiesnet.org/
Mission
Our mission is to advance research of the RASopathies by bringing together families, clinicians and scientists. Our goal is to grow a community of practice around RASopathies research. This includes:

- Convening biennial symposia to bring families, clinicians and researchers together
- Developing a discussion forum for professionals to foster collaborative research efforts
- Developing and maintain family-friendly informational resources, including a bibliography for lay and professional audiences.
- Researching the development and implementation of a family/patient-driven disease registry
Program Description
The website provides information on research, resources, and how to get involved and connected with the RASopathies community.
Financial
Services
Family Support
Genetic Disorders
Research
Counties Serviced
Nationwide
International
ABOUT SPECIAL KIDS RESOURCE DIRECTORY
7172 Graham Road, Suite 100, Indianapolis, IN 46250 E-Mail: familynetw@aboutspecialkids.org

As a matter of policy, About Special Kids does not specifically endorse any of the resources contained on our website or in our information packets. Resources are supplied for information purposes only and ASK recommends that families explore all options for assistance before making an informed choice.