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PRISMS, Inc.

Last Update:5/11/2018
Contact:
Title:
Address:21800 Town Center Plaza
Suite #266A-633
Sterling, VA 20164
County:Nationwide
Phone:972-231-0035
Toll Free:
Fax:972-499-1832
TDY:
E-Mail:
Website:www.prisms.org/
Mission
PRISMS, an acronym for Parents and Researchers Interested In Smith-Magenis Syndrome, is dedicated to providing information and support to families of persons with Smith-Magenis Syndrome (SMS), sponsoring research and fostering partnerships with professionals to increase awareness and understanding of SMS.
Program Description
PRISMS serves as a central clearinghouse for information about SMS, providing a range of educational and support services, including:
  • PRISMS website - www.prisms.org
  • Telephone and email support (including e-blasts with updated news and events)
  • Database of registered families
  • Official Quarterly Journal - Spectrum
  • SMS brochure, bookmarks, wristbands, (awareness items)
  • Information packet for newly diagnosed families, PRISMS brochure and video
  • Parent-to-Parent Program – a support and mentoring program
  • International conferences on SMS every 2-3 years
  • International Partnership Program (new)
Financial
Services
Genetic Disorders
Rare Disorders
Counties Serviced
Nationwide
ABOUT SPECIAL KIDS RESOURCE DIRECTORY
7172 Graham Road, Suite 100, Indianapolis, IN 46250 E-Mail: familynetw@aboutspecialkids.org

As a matter of policy, About Special Kids does not specifically endorse any of the resources contained on our website or in our information packets. Resources are supplied for information purposes only and ASK recommends that families explore all options for assistance before making an informed choice.