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CHARGE Syndrome Foundation, Inc.

Last Update:3/13/2018
Contact:Sheri Stanger
Title:Director of Outreach
Address:318 Half Day Road #305
Buffalo Grove, IL 60089
County:Nationwide
Phone:516-684-4720
Toll Free:800-442-7604
Fax:888-317-4735
TDY:
E-Mail:
Website:www.chargesyndrome.org
Mission

We lead and partner to improve the lives of people with CHARGE syndrome locally, nationally and internationally through outreach, education, and research.
 

  • Provide a broad network of support to individuals, families and professionals
  • Engage in knowledge acquisition, development and dissemination
  • Promote innovative scientific and clinical advancements
  • Champion the lifelong potential of people with CHARGE syndrome
Program Description

Our resources include:

  • New Parent Packet
  • Professional Packet
  • CHARGE Syndrome: A Management Manual for Parents
  • Webinars on selected subjects
  • CHARGE Accounts, a quarterly newsletter
  • Provider database
  • Parent to parent information
  • Links to other resources
  • Clinical database/registry
  • Biennial conferences for families and professionals
  • Social Media Sites - Facebook, Twitter, YouTube
Financial
Please call for information on costs or charges for membership. Information is free! \

Scholarships available for the biennial CHARGE Syndrome Foundation International Conference.

Annual Ethan Wolfe Recreational Assistance Program (EWRAP) for people with CHARGE syndrome.
Services
Deaf-Blind
Family Support
Genetic Disorders
Information & Referral
On-line Community/Listserv/Social Media
Parent Education/Training
Parent to Parent/Matching
Rare Disorders
Counties Serviced
Nationwide
ABOUT SPECIAL KIDS RESOURCE DIRECTORY
7172 Graham Road, Suite 100, Indianapolis, IN 46250 E-Mail: familynetw@aboutspecialkids.org

As a matter of policy, About Special Kids does not specifically endorse any of the resources contained on our website or in our information packets. Resources are supplied for information purposes only and ASK recommends that families explore all options for assistance before making an informed choice.