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United Leukodystrophy Foundation, Inc.

Last Update:8/6/2018
Contact:
Title:
Address:224 N. Second Street, Suite 2
DeKalb, IL 60115
County:International
Phone:(815) 748-3211
Toll Free:(800) 728-5483
Fax:(815) 748-0844
TDY:
E-Mail:
Website:www.ulf.org
Mission
The United Leukodystrophy Foundation serves individuals and families affected by leukodystrophy by exchanging information and promoting progress on research, treatment and prevention.
Program Description
The United Leukodystrophy Foundation (ULF), incorporated in 1982, is a nonprofit, voluntary health organization dedicated to: Providing patients and their families with information about their disease and assistance in identifying sources of medical care, social services, and genetic counseling; Establishing a communication network among families; Increasing public awareness and acting as an information source for health care providers; and Promoting and supporting research into causes, treatments, and prevention of the leukodystrophies.
Financial
Services
Family Support
Genetic Disorders
Information & Referral
On-line Community/Listserv/Social Media
Counties Serviced
Nationwide
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