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Williams Syndrome Association

Last Update:10/19/2017
Contact:Terry Monkaba
Title:Executive Director
Address:570 Kirts Blvd.
Suite 223
Troy, MI 48084
County:Out of state
Phone:248-244-2229
Toll Free:800-806-1871
Fax:
TDY:
E-Mail:
Website:http://www.williams-syndrome.org
Mission
The Williams Syndrome Association is a nonprofit organization that strives to enrich the lives of individuals and families affected by Williams syndrome and similar conditions through support, research and education.

We do this by:
  • Providing information and emotional support to individuals with characteristics of Williams syndrome, their families, and the professionals who work with them.
  • Developing programs and services to help build strengths and meet challenges from early childhood through adulthood.
  • Increasing public awareness and understanding of Williams syndrome.
  • Encouraging and supporting research into a wide range of issues related to Williams syndrome.
Program Description
Williams syndrome is a rare congenital disorder characterized by similar facial features, exceptionally sensitive hearing, developmental delays, short stature, and an impulsive, outgoing personality. Cardiovascular anomalies and/or infantile hypercalcemia are often present.

The programs of the Williams Syndrome Association are designed to support individuals with WS, their parents, and the professionals working with our children. Programs are provided at both the national and regional level.

At the national level, the WSA provides:
  • Bi-annual national convention
  • International professional conference
  • Adult committee and yearly workshop
  • Music camps
  • Scholarship programs
  • Research grants
  • Resource libraries
  • Member benefits
At the regional level, programs include one-day regional conferences and local resources.
Financial
Services
Advocacy
Camp
Developmental Delays/Disability
Education Scholarships
Genetic Disorders
Information & Referral
Spanish speaking community/materials
Counties Serviced
Nationwide
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