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5p Minus Society Cri-du-Chat

Last Update:11/30/2017
Contact:
Title:
Address:P.O. Box 268
Lakewood, CA 90714-0268
County:Nationwide
Phone:
Toll Free:(888) 970-0777
Fax:
TDY:
E-Mail:
Website:www.fivepminus.org
Mission
To encourage and facilitate communication amoung families with a member who has 5p- syndrome and to spread awareness and education about the syndrome to these families and their service providers.
Program Description

5p-Syndrome is characterized in infants by a high, shrill, mewing, kitten-like cry that fades in later infancy. Other abnormalities are present. Birth weight usually is low, and grow this slow. Almost all patients are microcephalic and mentally deficient.

Services:

  • Information to families, professionals
  • Peer support
  • Conference for members and professionals - scholarships to attend are available
  • Telephone "help line" (888) 970-0777
Financial
Resources directory and news from the website are free. Membership dues $25 per year (due December 31st of every year) and include email updates and events.
Services
Family Support
Grandparent Support
Grief / Loss
Information & Referral
Parent to Parent/Matching
Rare Disorders
Spanish Speaking Staff Available
Counties Serviced
Nationwide
ABOUT SPECIAL KIDS RESOURCE DIRECTORY
7172 Graham Road, Suite 100, Indianapolis, IN 46250 E-Mail: familynetw@aboutspecialkids.org

As a matter of policy, About Special Kids does not specifically endorse any of the resources contained on our website or in our information packets. Resources are supplied for information purposes only and ASK recommends that families explore all options for assistance before making an informed choice.