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Coffin-Lowry Syndrome Foundation

Last Update:6/26/2018
Contact:Mary C. Hoffman
Title:Chairperson
Address:675 Kalmia PL NW
Issaquah, WA 98027
County:International
Phone:(425) 427-0939
Toll Free:
Fax:
TDY:
E-Mail:
Website:www.clsf.info
Mission

The Coffin-Lowry Syndrome Foundation was formed in 1991 to serve as a clearinghouse for information on the syndrome, a support group for parents with CLS children, and a general forum for exchanging experiences, advice and information with other CLS families.

Program Description

Services:

  • Information
  • Peer support
  • Educational materials
Financial

There is no charge for membership or information related to Coffin-Lowry Syndrome. Donations are encouraged, however, as they are the Foundation's sole means of financial support.

Services
Genetic Disorders
Information & Referral
On-line Community/Listserv/Social Media
Parent to Parent/Matching
Rare Disorders
Support Group
Counties Serviced
Nationwide
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