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Recurrent Respiratory Papillomatosis Foundation (RRPF)

Last Update:7/22/2018
Contact:
Title:
Address:P.O. Box 6643
Lawrenceville, NJ 08648
County:Out of state
Phone:215-968-3074
Toll Free:
Fax:866-498-7559
TDY:
E-Mail:
Website:www.rrpf.org
Mission

The Recurrent Respiratory Papillomatosis Foundation was created to provide patient/family support, serve as an information resource for patients and practitioners, promote public awareness, and aid in the prevention, cure and treatment of RRP by encouraging and participating in promising RRP research studies.

Program Description

The RRP Foundation is primarily focusing on the networking of the RRP community, including patients (both juvenile and adult), families, medical practitioners and researchers.

The nuclei of the network is the RRP Newsletter. and the RRPF website. The newsletter and website include support network information, statistics and activities, individual RRP patient case histories, developments with regard to RRP (i.e., treatments and research directed to both practitioners and patients), plus any additional information that might help further understanding and/or awareness with regard to this disease.

Financial
Services
Lung / Respiratory Disease
On-line Community/Listserv/Social Media
Rare Disorders
Counties Serviced
Nationwide
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As a matter of policy, About Special Kids does not specifically endorse any of the resources contained on our website or in our information packets. Resources are supplied for information purposes only and ASK recommends that families explore all options for assistance before making an informed choice.