Translate this page:

Aplastic Anemia & MDS International Foundation, Inc.

Last Update:6/6/2018
Contact:
Title:
Address:4330 East West Highway
Suite 230
Bethesda, MD 20814
County:Out of state
Phone:(301) 279-7202
Toll Free:(800) 747-2820
Fax:(301) 279-7205
TDY:
E-Mail:
Website:www.aamds.org
Mission

To serve as a resource directory for patient assistance and emotional support, provide educational materials and updated medical information; and financially support research to find effective treatment for Aplastic Anemia, Myelodysplastic Syndromes, Paroxysmal Nocturnal Hemoglobinuria and other bone marrow failure diseases.

Program Description

The Aplastic Anemiaa nd MDS International Foundation is a national voluntary health organization dedicated to serving as a resource directory for patient assistance and emotional support for people with Aplastic Anemia, Myelodysplastic syndromes, and other bone marrow failure diseases. The foundation has additional focus and experience with paroxysmal nocturnal hemoglobinuria (PNH) and pure red cell aplasia.

The foundation helps families locate experts in the field to treat disease or offer second opinions to caregivers. In addition, the foundation helps locate open clinical trials for the treatment of related diseases.

The foundation provides support to families and health professionals. There is a Peer Support Network that the foundation uses to pair caregivers (caring for children with similar diseases) in need of support to discuss their children's needs.

A newsletter is published quarterly containing stories of how others are coping with this disease and information on new medical updates.

Financial
Services
Advocacy
Bone Marrow Diseases/Transplant
Fund Research
Information & Referral
Spanish speaking community/materials
Spanish Speaking Staff Available
Support Group
Counties Serviced
Nationwide
ABOUT SPECIAL KIDS RESOURCE DIRECTORY
7172 Graham Road, Suite 100, Indianapolis, IN 46250 E-Mail: familynetw@aboutspecialkids.org

As a matter of policy, About Special Kids does not specifically endorse any of the resources contained on our website or in our information packets. Resources are supplied for information purposes only and ASK recommends that families explore all options for assistance before making an informed choice.