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Share and Care Cockayne Syndrome Network

Last Update:7/21/2018
Contact:
Title:
Address:P.O. Box 282
Waterford, VA 20197
County:Out of state
Phone:703-727-0404
Toll Free:
Fax:
TDY:
E-Mail:
Website:www.cockaynesyndrome.org
Mission
Helping children with Cockayne-Syndrome and their families improve their quality of life through support, education and research.
Program Description

Website provides:

  • Information about Cockayne-Syndrome
  • Research Updates
  • Information for new parents
  • Forum
  • Resources

Friend us on Facebook http://www.facebook.com/cockaynesyndrome

Financial
Services
Genetic Disorders
On-line Community/Listserv/Social Media
Spanish Speaking Staff Available
Counties Serviced
Nationwide
ABOUT SPECIAL KIDS RESOURCE DIRECTORY
7172 Graham Road, Suite 100, Indianapolis, IN 46250 E-Mail: familynetw@aboutspecialkids.org

As a matter of policy, About Special Kids does not specifically endorse any of the resources contained on our website or in our information packets. Resources are supplied for information purposes only and ASK recommends that families explore all options for assistance before making an informed choice.