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DebRA of America, Inc. / Epidermolysis Bullosa

Last Update:5/11/2018
Contact:
Title:
Address:75 Broad Street
Suite 300
New York, NY 10004
County:Nationwide
Phone:212-868-1573
Toll Free:
Fax:212-868-9296
TDY:
E-Mail:
Website:www.debra.org
Mission
The mission of debra of America is to improve the quality of life for all people living in the United States with EB, their families, and caregivers through free programs and services while funding research to find a cure and treatments for Epidermolysis Bullosa.
Program Description
  • Supports ground breaking research into the causes and treatment of EB.
  • Hotline staffed by a Nurse Educator to provide medical information, professional references, and emotional support for people with EB and their caregivers.
  • Family Advocate program
  • Patient Care Conference
  • Wound Care Clearinghouse collects donated wound care supplies and distributes them free to EB patients in need.
  • Family Crisis Fund provides emergency assistance to alleviate some of the financial burden of unreimbursed costs of medical supplies.
  • Newsletter
  • Website
  • Annual Benefit and fundraising events.

Call us for more info.

Financial
DebRA receives no public funding. We are funded by individuals, corporations and foundations.
Services
Rare Disorders
Skin Disorders
Spanish Speaking Staff Available
Counties Serviced
Nationwide
ABOUT SPECIAL KIDS RESOURCE DIRECTORY
7172 Graham Road, Suite 100, Indianapolis, IN 46250 E-Mail: familynetw@aboutspecialkids.org

As a matter of policy, About Special Kids does not specifically endorse any of the resources contained on our website or in our information packets. Resources are supplied for information purposes only and ASK recommends that families explore all options for assistance before making an informed choice.