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Parents as Collaborative Leaders

Last Update:2/9/2017
Contact:University of Vermont
Title:College of Education and Social Services
Address:499 Waterman Building
85 So. Prospect St.
Burlington, VT 05405
Toll Free:

Parents as Collaborative Leaders: Improving Outcomes for Children with Disabilities is a national partnership between the University of Vermont, PACER Center, and several other parent and advocacy organizations.

The project has developed research-based training materials and internship experiences to support parents of children with disabilities in becoming active leaders in policy development and evaluation.

Program Description

Active parent leadership will lead to improved educational outcomes for children. Key project activities have included:

  • Development of a core curriculum on collaborative leadership has been developed, delivered, and evaluated by 32 parent leaders from across the country who participated in leadership orientations;
  • Implementation of leadership internships for each of the participating parent leaders, with support and mentorship from coordinators in each parent's home state;
  • Development of 10 modules, based on the core curriculum, now available on this website for national dissemination; and
  • Ongoing dissemination of materials and key findings to parent centers and parent membership organizations focused on children with disabilities and their families.

Materials on the website may be modified to meet your organization's needs. We do ask that you list the project as the original author of the materials. Please feel free to contact Katharine Shepherd with any questions.


This project was originally funded by the United States Department of Education and now receives support from the National Institute for Leadership, Disabilities, and Students Placed-at Risk (NILDSPAR).

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As a matter of policy, About Special Kids does not specifically endorse any of the resources contained on our website or in our information packets. Resources are supplied for information purposes only and ASK recommends that families explore all options for assistance before making an informed choice.