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SWAN USA - Syndromes Without a Name

Last Update:11/17/2017
Contact:
Title:
Address:1745 Lorna Ln
Otsego, MI 49078
County:Nationwide
Phone:269-692-2090
Toll Free:888-880-7926
Fax:
TDY:
E-Mail:
Website:www.swanusa.org
Mission

We advocate for children and young adults who have syndromes without a name. We offer support, advice and information on the challenges that families face when there is no diagnosis. We also advocate for changes in the medical community that will benefit undiagnosed individuals.

Program Description

We provide support to parents/children/families in order to:

  • address the lack of information families have without a diagnosis
  • offer empathy/understanding/connections to other families
  • motivate and empower parents/families to advocate for the best heathcare/services for their child
  • we help to address psychosocial concerns such as feelings of isolation, guilt, helplessness, frustration, emotional distress, etc.
Financial

A nonprofit tax exempt 501c3 organization

Services
Family Support
Counties Serviced
Nationwide
ABOUT SPECIAL KIDS RESOURCE DIRECTORY
7172 Graham Road, Suite 100, Indianapolis, IN 46250 E-Mail: familynetw@aboutspecialkids.org

As a matter of policy, About Special Kids does not specifically endorse any of the resources contained on our website or in our information packets. Resources are supplied for information purposes only and ASK recommends that families explore all options for assistance before making an informed choice.