Translate this page:

Ehlers-Danlos Society

Last Update:5/11/2018
Contact:
Title:
Address:P.O. Box 87463
Montgomery Village, MD 20886
County:Nationwide
Phone:410-670-7577
Toll Free:
Fax:
TDY:
E-Mail:
Website:www.ednf.org
Mission

Collaborative research bringing together medical professionals from all over the world to work on ground-breaking treatment.

Organizing medical symposiums every two years to update the diagnostic criteria and guidelines for management and care.

Bringing together and uniting our community, providing annual conferences to distribute information and create opportunities to interact.

Producing reliable up-to-date medical literature though our esteemed medical and scientific board.

Guiding both patients and medical professionals to information, resources, support, and education.

Uniting support groups and charities from around the world, providing resources and information where needed.

Building chapters so that The Ehlers-Danlos Society becomes a recognized brand globally. One person fighting is a start, but many together build an army.

Giving HOPE to all those whose lives are affected by Ehlers-Danlos syndromes.

Program Description
Website provides information on Ehlers-Danlos syndromes (EDS) as well as a message board and a listing of support groups.
Financial
Services
Genetic Disorders
Counties Serviced
Nationwide
ABOUT SPECIAL KIDS RESOURCE DIRECTORY
7172 Graham Road, Suite 100, Indianapolis, IN 46250 E-Mail: familynetw@aboutspecialkids.org

As a matter of policy, About Special Kids does not specifically endorse any of the resources contained on our website or in our information packets. Resources are supplied for information purposes only and ASK recommends that families explore all options for assistance before making an informed choice.