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Trisomy 18 Foundation

Last Update:9/27/2016
Contact:Kris Shaughnessy
Title:Manager of Community Affairs
Address:4491 Cheshire Station Plaza, Suite 157
Dale City, VA 22193
Toll Free:
Our Mission is to guide the search for a cure and treatments, to educate and support medical professionals, and to create a caring worldwide community for affected families.
Program Description
The Trisomy 18 Foundation has five goals:
  1. To insure that all appropriate physicians and health care providers are aware of the full range of health outcomes, have ready access to the latest information to insure more accurate diagnosis and prognosis, and can easily make use of the resources they need to provide access to effective medical treatments and psycho-social care for the entire family.
  2. To encourage, guide, and fund additional research to advance knowledge of the syndrome and improve treatments for affected children, and ultimately to develop a “cure” to Trisomy 18 chromosomal errors in the earliest stages of pregnancies.
  3. To create a caring worldwide community that will offer each Trisomy 18 family information, guidance, and emotional support.
  4. To build and sustain a broad base of concerned contributors who will provide the necessary funds to accomplish these mission and goals.
  5. To create, inspire, and make effective use of an organization of passionate individuals dedicated to reaching our vision; a world in which Trisomy 18 is preventable and treatable and every family has access to compassionate and knowledgeable care that respects the humanity of their child.
Developmental Delays/Disability
Fund Research
Genetic Disorders
Grief / Loss
Information & Referral
On-line Community/Listserv/Social Media
Parent to Parent/Matching
Public Policy
Rare Disorders
Spanish speaking community/materials
Spanish Speaking Staff Available
Counties Serviced
7172 Graham Road, Suite 100, Indianapolis, IN 46250 E-Mail:

As a matter of policy, About Special Kids does not specifically endorse any of the resources contained on our website or in our information packets. Resources are supplied for information purposes only and ASK recommends that families explore all options for assistance before making an informed choice.