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SOFT - Support Organization for Trisomy

Last Update:1/31/2017
Contact:
Title:
Address:2982 S. Union Street
Rochester, NY 14624-1926
County:Out of state
Phone:
Toll Free:(800) 716-7638
Fax:(716) 594-1957
TDY:
E-Mail:
Website:www.trisomy.org
Mission
SOFT is a network of families and professionals dedicated to providing support and understanding to families involved in the issues and decisions surrounding the diagnosis and care in Trisomy 18, 13, and related chromosomal disorders. Support is provided during prenatal diagnosis, the child's life and after the child's passing.

SOFT is committed to respecting a family's personal decision- in alliance with a parent/professional partnership.
Program Description

Families can call for information about individual chapters or support. They also can write to our address for information.

Other Services:

  • International conference is yearly at rotating sites.
  • Database for family matches.
  • Chapters in most states.
  • Large quarterly newsletter with pictures, descriptions and stories by the parents for children with these disorders.
  • S.O.F.T offers Facebook site
  • Indiana Contact: leapinlawsons@sbcglobal.net
Financial
Services
Developmental Delays/Disability
Family Support
Genetic Disorders
Information & Referral
Spanish speaking community/materials
Counties Serviced
Entire State
Nationwide
ABOUT SPECIAL KIDS RESOURCE DIRECTORY
7172 Graham Road, Suite 100, Indianapolis, IN 46250 E-Mail: familynetw@aboutspecialkids.org

As a matter of policy, About Special Kids does not specifically endorse any of the resources contained on our website or in our information packets. Resources are supplied for information purposes only and ASK recommends that families explore all options for assistance before making an informed choice.