ASK participates in many special projects that further the interests of families of children with special needs. These projects are funded through various sources and donations to the organization are also always welcome.
Indiana Parent Education Project
Through this project, About Special Kids staff provide families of children with special needs information and referral to community agencies, training and education and peer support. ASK staff also provide information to professionals who work with children with special needs and their families. A unique aspect of this project is the follow-up support that is given to families after they contact About Special Kids. Follow-up calls are scheduled to cover information for families on many topics such as special education, health care financing, respite, child care and the medical home. ASK distributes information through personal contact with an About Special Kids Parent Liaison, our website, a monthly e-newsletter, trainings, information fairs and the About Special Kids online resource directory.
Funding Source: Indiana State Department of Health, Maternal and Children's Special Healthcare Services.
Grant Year: Oct. 1-Sept. 30
Community Pediatrics Training Initiative
In collaboration with the Indiana University School of Medicine, ASK is one of three community based organizations (CBO's) that provides community learning experiences for pediatric residents in the Indiana University medical education program at Clarian Health Partners. The focus populations of the project are children with special health care needs who are defined as children with disabilities and serious chronic illness, Hispanic children whose parents speak English as a second language, and children who are victims of domestic violence. This project is changing the way pediatric residents are trained to work with community organizations in meeting the needs of children with special needs and their families through site visits, interactions with families and children, and special projects.
Funding Source: Indiana University, (grant from Anne. E. Dyson Foundation)
Contract Year: July 1 - June 30
Care Coordination Projects
In 2002, About Special Kids (ASK) began to build a partnership with MDwise, a Medicaid managed care organizations (MCO) in order to provide premium service to their families who have children with special needs. ASK is pleased that this program has grown from one MCO to several care coordination entities throughout the state (see Funding Sources below). ASK currently provides care coordination services to participants and their families. Children and youth with chronic illnesses or disability often have complex medical, educational, social and vocational needs that require a wide range of services. The number of providers and agencies involved can be overwhelming to the family. ASK staff will be available to assist families in their efforts to understand the medical home concept and to ensure that the child or youth receives appropriate, comprehensive family-centered care.
ASK provides intensive services to families of children with special needs in conjunction with medical and behavioral case management received from these organizations. The range of services ASK provides includes information & referral to community resources, 1 on 1 training regarding health care financing options and education options, and peer support. ASK also educates the care coordination personnel about community resources, education, health care financing options and disability issues. The goal is to one day expand this project to include private health insurance companies.
Funding Sources: MDwise, Anthem, MHS, Children's Special Health Care Services