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AXYS (formerly Klinefelter Syndrome & Associates - KS&A)

Last Update:9/1/2017
Contact:
Title:
Address:PO Box 861
Mendenhall, PA 19357
County:Nationwide
Phone:
Toll Free:(888) 999-9428
Fax:
TDY:
E-Mail:
Website:www.genetic.org
Mission
AXYS's mission is to help individuals with one or more extra X and/or Y chromosomes and their families lead fuller and more productive lives
Program Description

We endeavor to fulfill this mission of satisfying unmet needs and improving the lives of individuals and families affected by X and Y chromosome aneuploidies including 47,XXY, Klinefelter syndrome, Trisomy X, 47,XYY syndrome and associated conditions through:

  • Support - providing services and support geared to the needs of our members, their families, and the clinical and educational professionals who assist them;
  • Education - assuring that up-to-date, scientifically accurate information is in the hands of the appropriate people at the times they need it, as well as fairly and respectfully reported in the media;
  • Research - encouraging the advancement of research and other scholarly activities that support the generation and dissemination of knowledge about these conditions; and
  • Treatment - helping make available new, improved and more affordable treatments and interventions that will address the health and educational needs of adults, adolescents and children who are affected by – or at risk of becoming adversely affected by – these conditions.
Financial
Services
Adult Support Groups
Advocacy
Attention Deficit Disorder (ADD)/Attention Deficit Hyperactivity Disorder (ADHD)
Autism/PDD
Developmental Delays/Disability
Family Support
Genetic Disorders
Information & Referral
Learning Disabilities
Parent Education/Training
Rare Disorders
Research
Sensory Integration
Spanish speaking community/materials
Spanish Speaking Staff Available
Speech / Language Delays
Support Group
Counties Serviced
Nationwide
ABOUT SPECIAL KIDS RESOURCE DIRECTORY
7172 Graham Road, Suite 100, Indianapolis, IN 46250 E-Mail: familynetw@aboutspecialkids.org

As a matter of policy, About Special Kids does not specifically endorse any of the resources contained on our website or in our information packets. Resources are supplied for information purposes only and ASK recommends that families explore all options for assistance before making an informed choice.