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Angelman Syndrome Foundation, Inc. (ASF)

Last Update:6/6/2018
Contact:
Title:
Address:75 Executive Drive
Suite 327
Aurora, IL 60504
County:Nationwide
Phone:
Toll Free:800-432-6435
Fax:630-978-7408
TDY:
E-Mail:
Website:www.angelman.org
Mission
To advance the awareness and treatment of Angelman syndrome through education and information, research, and support for individuals with Angelman syndrome, their families and other concerned parties. We exist to give all of them a reason to smile, with the ultimate goal of finding a cure.
Program Description
Angelman syndrome (AS) is a rare neuro-genetic disorder that occurs in one in 15,000 live births. Angelman syndrome is often misdiagnosed as cerebral palsy or autism due to lack of awareness. Characteristics of the disorder include developmental delay, lack of speech, seizures, and walking and balance disorders.

The ASF is dedicated to helping families, care providers and medical professionals arm themselves with as much helpful information about AS as possible. The Foundation sponsors AS research through grants to researchers who pursue promising avenues of discovery.

The ASF sponsors a biennial conference which gives you the opportunity to hear the latest research results, therapeutic techniques, educational strategies, long-term planning and financial-planning information. The conference also offers many networking opportunities to talk to families that are dealing with the same issues you might be having while caring for an individual with AS.

The foundation has also created a registry of persons and families affected by AS in order to: immediately notify potential participants for Angelman research trials, to alert you of recent events and research findings, and let you specify the way you would like to be contacted.
Financial
Non-profit 501(c)(3) organization
Services
Education
Neurological Disorders
Rare Disorders
Research
Spanish speaking community/materials
Counties Serviced
Nationwide
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As a matter of policy, About Special Kids does not specifically endorse any of the resources contained on our website or in our information packets. Resources are supplied for information purposes only and ASK recommends that families explore all options for assistance before making an informed choice.