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Association for Glycogen Storage Disease (AGSD)

Last Update:12/13/2017
Contact:
Title:
Address:Box 896
Durant, IA 52747-9769
County:Out of state
Phone:(563) 514-4022
Toll Free:
Fax:(563) 514-4022
TDY:
E-Mail:
Website:www.agsdus.org
Mission

The purpose of the Association for Glycogen Storage Disease is:

  • to protect and promote the best interests of all persons and families affected by Glycogen Storage Disease [GSD];
  • to promote the establishment, improvement, and management of facilities for the treatment, study, education, shelter, recreation, recuperation and other general benefit to GSD-affected persons;
  • to act as a vehicle of communication on GSD-related matters to patients, families, professionals, and the public; and
  • to act as a focus for scientific, educational, and charitable activities related to the disease.
Program Description
We provide parent support and information on GSD to families and the affected persons, and professionals involved with GSD.
Financial
Parent Handbook - $10.00, USA.

Membership dues - Active $20.00 (Nov.1 - March 1.) Associate - $15.00
Services
Evaluations/Assessments
Family Support
Fund Research
Information & Referral
Metabolic Conditions
Rare Disorders
Support Group
Counties Serviced
Nationwide
International
ABOUT SPECIAL KIDS RESOURCE DIRECTORY
7172 Graham Road, Suite 100, Indianapolis, IN 46250 E-Mail: familynetw@aboutspecialkids.org

As a matter of policy, About Special Kids does not specifically endorse any of the resources contained on our website or in our information packets. Resources are supplied for information purposes only and ASK recommends that families explore all options for assistance before making an informed choice.