5p Minus Society Cri-du-Chat
| Contact: | |
| Title: | |
| Address: | P.O. Box 268
Lakewood, CA 90714-0268 |
| County: | Nationwide |
| Phone: | |
| Toll Free: | (888) 970-0777 |
| Fax: | |
| TDY: | |
| E-Mail: | |
| Website: | www.fivepminus.org |
Mission
To encourage and facilitate communication amoung families with a member who has 5p- syndrome and to spread awareness and education about the syndrome to these families and their service providers.
Program Description
5p-Syndrome is characterized in infants by a high, shrill, mewing, kitten-like cry that fades in later infancy. Other abnormalities are present. Birth weight usually is low, and grow this slow. Almost all patients are microcephalic and mentally deficient.
Services:
- Information to families, professionals
- Peer support
- Conference for members and professionals - scholarships to attend are available
- Telephone "help line" (888) 970-0777
Financial
Resources directory and news from the website are free. Membership dues $25 per year (due December 31st of every year) and include email updates and events.
Services
Family Support
Grandparent Support
Grief / Loss
Information & Referral
Parent to Parent/Matching
Rare Disorders
Spanish Speaking Staff Available
Counties Serviced
Nationwide