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American Porphyria Foundation (APF)

Last Update:3/26/2019
Contact:
Title:
Address:4915 St. Elmo Ave
Suite 105
Bethesda, MD 20814
County:Nationwide
Phone:301-347-7166
Toll Free:866-273-3635
Fax:
TDY:
E-Mail:
Website:www.porphyriafoundation.org
Mission
The APF is dedicated to improving the health and well-being of individuals and families affected by Porphyria.
Program Description

The APF:

  • Enhances public awareness;
  • Develops educational programs and distribute educational materials; and
  • Supports research to improve treatment and ultimately lead to a cure.

The APF also serves as an advocate on your behalf to other public, private, and government agencies interested in funding research and educational programs.

Financial
A donation of $35 entitles a person to a year membership, informational literature, physician referrals and support networks. (If financial need is a problem, individuals should inform us as such.)
Services
Advocacy
Information & Referral
Metabolic Conditions
Counties Serviced
Nationwide
ABOUT SPECIAL KIDS RESOURCE DIRECTORY
7172 Graham Road, Suite 100, Indianapolis, IN 46250 E-Mail: familynetw@aboutspecialkids.org

As a matter of policy, About Special Kids does not specifically endorse any of the resources contained on our website or in our information packets. Resources are supplied for information purposes only and ASK recommends that families explore all options for assistance before making an informed choice.