Impact of Health on Sibling Development and Well-Being into Adulthood

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You are being invited to participate in a research study on Children with Special Health Care Needs (CSHCN) and the Impact of Their Health on Sibling Development and Well-Being into Adulthood that I am completing for my dissertation in the Health Behavior program at the Indiana University School of Public Health.    
 
Purpose of this study: The purpose of this study is to explore typically developing siblings' experiences living with a sibling who had special health care needs within their immediate family structure*.
 
*Immediate family structure is defined as living in the same home with the sibling who had special health care needs 
 
Who can participate?
  • ​Typically developing sibling currently aged 18 years or older
  • Sibling with special health care needs had a diagnosis of autism/autism spectrum disorder, Down syndrome, or cerebral palsy
  • Relationship to sibling can be biological or adoptive
  • Must be brother or sister relation
  • Lived in the same home with your sibling for at least 5 years during childhood and adolescence
What is involved?  
  • ​A demographic questionnaire and an audio-recorded 45-minute interview at your convenience asking about your experiences living with your sibling with special health care needs.
Incentive to participate
  • ​You will receive a $15 gift card for participating in this study.  
Interested or would like additional information?  Please contact:
Shirley Payne, MPH
Doctoral Candidate, Health Behavior
Indiana University School of Public Health
Department of Applied Health Science 
sipayne@iu.edu